LIVING WITH A BERLIN HEART
Information for parents and families
When a child needs a VAD device, you may wonder how to cope, but family life will go on!
Our experience in helping families has enabled us to create this guide which gives practical advice enabling you to deal with the ups and downs of the journey and plan ahead for the future.
WHAT'S HAPPENING WITH MY HEART?
Interactive information designed for children
Children can find out about the heart and circulation in a friendly and reassuring way by clicking on questions and reading/listening to the answer. Basic information and conversation openers about heart failure and its treatment, to be viewed alone or with an adult.
PHYSIOTHERAPY, MOVEMENT AND DEVELOPMENT IN CHILDREN WITH A BERLIN HEART
Tips & Advice for families & non-medical professionals
Children with a Berlin Heart can do more than you think!
In this learning package we show you how to help build up a young child's strength, move forward with developmental stages and participate in age-appropriate play. Useful for parents, carers and hospital staff to work through together.
POSITIVE SENSORY EXPERIENCES FOR A YOUNG CHILD IN HOSPITAL
Information for parents, families, nurses and play leaders
Children need to experience a wide range of sensations to build themselves a picture of the world and for their motor and learning development. This can be a challenge in the hospital environment, but in this learning package, knowledge of sensory processing and child development will help you to provide a positive experience for the child.
CARING FOR CANNULA SITES
Recommended Procedure for Cleaning and Dressing the Cannula Exit Sites
On a realistic mannikin, the correct procedure for performing a cannula site clean and re-dress is explained and demonstrated in small steps.