Patienten, Eltern, Besucher

For Families and Non-Medical Professionals

Here you will find information and useful advice to enhance your child's wellbeing throughout the hospital stay and the time afterwards at home.

This area is managed by The Newcastle Upon Tyne Hospitals NHS Foundation Trust, UK

LIVING WITH A BERLIN HEART

Information for parents and families

When a child has heart failure, the journey can be stressful for everyone, but family life goes on!
Our experience in helping families through this situation has enabled us to create this guide which gives some practical advice enabling you to deal with the uncertainty of the present and plan ahead for the future.

 15 min.

PHYSIOTHERAPY, MOVEMENT AND DEVELOPMENT IN CHILDREN WITH A BERLIN HEART

Tips & Advice for families & non-medical professionals

Children with a Berlin Heart can do more than you think!

In this learning package we show you how to help build up a young child's strength, move forward with developmental stages and participate in age-appropriate play. Useful for parents, carers and hospital staff to work through together.

 25 min.

POSITIVE SENSORY EXPERIENCES FOR A YOUNG CHILD IN HOSPITAL

Information for parents, families, nurses and play leaders

Children need to experience a wide range of sensations to build themselves a picture of the world and for their motor and learning development. This can be a challenge in the hospital environment, but in this learning package, knowledge of sensory processing and child development will help you to provide a positive experience for the child.

 15 min.

WHAT'S HAPPENING WITH MY HEART?

Interactive information designed for children

Children can find out about the heart and circulation in a friendly and reassuring way by clicking on questions and reading/listening to the answer. Basic information and conversation openers about heart failure and its treatment, to be viewed alone or with an adult.

 25 min.

PATIENT STORIES

Information for parents and families

Our parents share with you the story of their child's journey and their own thoughts, as they learn about the ventricular assist device and comes to terms with a changing situation.  Each child's journey is different, as you will see. 

 15 min.